What would you tell a patient who asks what to expect while participating in a clinical trial?

"I believe in making sure that patients are educated regarding their care. For patients participating in trials, it is important to assure them that participants work with a research or clinical trial team, including doctors, nurses, social workers, and other health care professionals. Before the trial, the research team will check the participant's health and review any special instructions for trial participation. As the trial begins and throughout its duration, the research team will administer treatment and monitor the participant regularly to determine the effectiveness and side effects of the treatment."

"The most important thing is to ensure patients are aware of the trial's objective. For example, if a new drug is being tested, the objective would be that the drug is effective in treating the disease with little to no ill effects. Also, assuring the participant that the research team will work closely with them throughout the trial. Many patients are also relieved to know that the research team will work closely with their primary physician throughout the trial."